My Life of Love




Hi. My name is Rachael. 

I’m a Sydney based Mum. Yes, this is ANOTHER Mummy blog. But I like to think mine is different. For starters I don't actually mind if anyone else reads it. 

This is my new therapy. This is for me. It is my outlet for all my thoughts as I try to figure out this world and what it all means after the death of my daughter Mackenzie. 

Mackenzie was 7 months and 11 days old when my husband and I lost her to a 'rare' genetic disorder called Spinal Muscular Atrophy (SMA) type one. This year has truly been the worst year of our lives, whilst simultaneously also being the best year of our lives. 

It has left us with a lot to process.

I have found writing has helped me, it has been a release, allowing me to vent. Instagram in particular has been a wonderful escape for me. It has provided me with a platform to talk about my baby and has brought strangers into my life who have lifted me up when times got hard. They showed me there is still kindness in this world. But Instagram is limited and there is only so much you can say. 

I hope this site will give me an honest space where I can safely share my thoughts on losing Mackenzie, how we are dealing with our grief and finding happiness despite the pain. However, I also want to be able to write like a normal mum about pregnancy, motherhood, birth and our IVF path to more children. I am still Mackenzie's Mum and always will be.

I hope my writings help someone, but mostly I hope they help me. It feels self indulgent to start a blog; to think people would want to read what I have to write but a dear friend said to me 'if writing helps you then why wouldn't you do it'. So, with that, this is my real honest life. It is my life of love xx

For those who are looking for information on how to get genetic testing NOW while Mackenzie’s Mission is being set up please go straight to my blog post called Genetic Testing

After recently being inundated with requests to help us, and some very serious discussions, Jonny and I reluctantly realised we may need (more) assistance to get Mackenzie's siblings... our Go Fund Me link for our IVF is below, but please don't feel you need to, we have already had so much love and generosity: 

Please use the navigation link on the side to find my blog articles.